5 December 2017

Two lessons learnt after three months of volunteering at three hospices…

Long time back, I had read a book “Top Five Regrets of a Dying Man” by an Australian hospice nurse – Bronnie Ware who had distilled her 51 years of being around people who were waiting to die in 5 simple truths on what we regret about when we look back at life. Sometime around then, working at a hospice became an entry in my my bucket list after reading that book.

First, I reasoned that it would help me set perspective for the years I have left. But more importantly, I thought there was a second part of that book Bronnie meant to write some day – what the postitive reflections are that people have once they realize that their days are numbered.

Getting the opportuinity to work at three hospices for the last three months (started with seven patients, lost four of them and added six more), I am starting to get some glimpse of those reflections. Specifically, I have come to two realizations…

Lesson 1: People take great pride in their children

Without exception, every patient – at least the ones that can hold a rational discussion – is very proud of their children. Even the most quiet ones can become animated if you just ask them “What do your kids do?”

You probably remember the gentleman who kept his daughter’s phone number in his hat. You may also remember the blind gentleman who was very proud of how much his kids do for him. I even have a patient who has a picture of herself with her three kids on her shelf – but I am not allowed to talk about the daughters (who as I understand are fighting unsuccessfully drug addiction and swindled their mom of a lot of money). Try talking to her about her son though and she will hold court for at least half an hour before she will come up for breath.

The general sense I get is that in your last days, you realize that your kids are one of the very few things that are absolutely your own creation. Nobody else could have create exactly they way they are. And in any which way you have influenced them – your effects in this world is going to outlive you by about 30 years or even more.

Lesson 2: Everybody has a story. And they want to tell it.

Once a patient starts opening up, almost always it is about their past life. It is like they just want somebody to listen to their reflections. Most are very proud of what their life has been.

The other day, as I was walking from the parking lot of one of the hospices to the building itself, I saw an old lady walking along with her walking stick enjoying the sun. No sooner than had I greeted her and asked her how she was doing (I did not know her at all), she stood there for thirty five minutes and gave me a synopsis of her life story. With a great sense of humor too!

One of those patients who is no more (in fact, he passed away when I had gone to India to tend to my dad), used to wait for me to come the next time to tell me one more of his chapter of life. Same with the blind gentleman.

Now, realize that some of those stories were not very consisten. For sure, they were biased. But the accuracy of the story is not my point.

My point is, I think before they die, they want their story to be heard. They want to leave their story behind. They are proud of the unique achievements they have had and most look back with some satisfaction. But there are no avenues for them to let the world know of their story. And perhaps, they realize that with them, their story will die too. Not too many of them are going to write down autobiographies.

Giving them an avenue to narrate their story the way they saw their life is an interesting “service” I have stumbled upon. One thing is for sure – each and every one of them has a story. And they are in a hurry to get it out… if you have the time to listen.

Those are the two lessons for now.

Would love to exchange notes with any of you who might have had similar or contrarian experiences.

I will certainly keep you posted as I learn more from my association with hospice patients.



Posted December 5, 2017 by rajibroy in category "In Transit

5 COMMENTS :

  1. Amitesh MukherjeeBy Amitesh Mukherjee on

    “In any which way you may have influenced your children, your effects in this world will outlive you by about 30 years or more – “….. I find it particularly true in my personal experience. But I believe, you have learnt your Lesson #2 much before your three-month tenure at hospices, and that is particularly evident in so many of your (millions of :-)) posts that has nothing to do with someone waiting for their final moments but has everything to do with – ‘Everyone has a story to tell – let’s go ask them’. Nice write up.

    Reply
  2. Stephen HunterBy Stephen Hunter on

    What do you feel there my friend? There can be no analytics in that place. Only the ephemeral and truly never ending story of humanity is what you see there in the hospice.

    Individualized as it is, in the separate details of each life lived among lives.

    What completeness you may find, lies along the entire path from birth to death All of it sustained by Hope.

    As the parents of a newborn baby have Hope, the emotion lasts all the way through to the end of each life- and on-through the next generation of optimists. That never ending, existential emotion of Hope.

    The stories they share are their gifts of Hope…to you.

    Reply
  3. Dale GreenBy Dale Green on

    Rajib Roy I work with people every single day that are on disability or in their Medicare years. Your write up is dead on. You and I could sit down and talk for hours about our experiences. I have learned that there are millions of people out there that just want you to lend an ear. Be nice to them and help them. They have no one to turn to. When I can help these people financially it lifts a burden from their heart. (For me – it makes life worth living). I have learned that I am so blessed and there are so many people out there hurting in so many ways. But the world goes through each day at a hundred miles an hour and never pauses to just sit back and be thankful for what you have or for at least good health.

    At the end of the day, all we have is our health, family and god.

    Reply
  4. Thomas LatimerBy Thomas Latimer on

    Rajib, thank you for capturing this as only you could!! I know you are doing justice to their stories and I can’t wait to read the next lessons!

    Reply
  5. Bala KrishnanBy Bala Krishnan on

    possibly, people reflect on the love they have showered on people around them. And regret for not having been more generous in spreading love.

    Reply

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